It is two weeks since my walk and we have now raised over £5oo! I've still got money to collect so the grand total may end up being higher than £600! Brilliant!
I've recently been in contact with my mum's cousin. She had a brain tumour, and so did her mother,( my mum's auntie) and they were both treated at the National Hospital for Neurology.
I wanted to know what type of tumour they both had and it turns out that she had a meningioma, and it was benign (mine was a glioma and an astrocytoma benign). They couldn't remove it all the first time and it started to re-grow and they had to do a second operation in which they managed to remove all of it. She told me that she now has weakness in her left hand side, permenantly. Which means that her tumour was on the right side. She also said that she was diagnosed in her early 30's she is now 49( I was 28. her symptoms were that she had earache so bad that she would be reduced to tears, and it took a few years for her doctors to diagnose what was wrong with her. She is doing well she tells me and long term has few problems, apart from the fact that she is also on anti-depressants.
Her mother was also diagnosed in her 30's with a benign tumour and she believes that she also had a meningioma but that they couldn't remove all of it and that she had to have radiotherapy. It didn't grow back but she had many health problems throughout her life related or unrelated I really don't know, but I do know that she was in a wheelchair at the end of her life and she lived to be 70. She had weakness in one side of her body also. I believe that through talking to my nan who was her sister, that she found out that she had a tumour because her vision was effected and I think that she had a fit.
On talking to my mum's cousin she believes that her tumour was genetically inherited. Which I am tending to think, because it is too much of a coincidence. Even though the doctors who research into the causes of low -grade brain tumours say that there is no proven genetic link of inheritance. The researchers I believe are mainly focusing on malignant tumours, which of course they should do. Anyway I had a low grade glioma and my relatives had meningioma's so maybe it is not at all related. I really don't think I'm ever going to find out why I had a brain tumour, I just can't help wondering.
Monday, 29 September 2008
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